Congratulations on the birth of your new baby!!


If your baby is healthy, their needs will be just like other babies. You don’t need to be doing anything different or special at this stage. We know that it can be difficult at first to see past the Down’s syndrome to your baby’s individual personality. Take time to listen to them, get to know them and enjoy them. A loving secure environment is the most important thing that you can give your baby at this time.

Parents react in different ways to the news that their baby has Down’s syndrome and you will be experiencing a wide range of emotions during the first few months. This is all perfectly normal, we have all been there.


What is Down’s syndrome?


Down’s syndrome is a genetic condition caused by the presence of an extra chromosome 21 in the body’s cells. Down’s syndrome is not a disease, and it is not a hereditary condition. It occurs by chance at conception. As yet we do not know what causes the presence of an extra chromosome 21. What we do know is that no one is to blame. As far as we know, nothing done before or during pregnancy causes the syndrome. It occurs in all races, social classes and in all countries throughout the world. It can happen to anyone.


What are people with Down’s syndrome like?


People with Down’s syndrome are not all the same. Whilst there are certain physical characteristics that are more common, people with Down’s syndrome will share more physical features with other people in their family than with other people with Down’s syndrome. Everyone with Down’s syndrome will have some degree of learning disability. But the most important thing to remember is that everyone with Down’s syndrome is an individual, with their own strengths and weaknesses and personality traits that make them who they are.


What our group can offer you...


Too much or even too little information can be overwhelming, however, at whatever point you feel ready, or in whatever way you would like, the Peterborough Area Down's Syndrome Group is here to support you.  If you would like to speak to our ‘New Parent Contacts’ please contact one of the following members:


The Deepings area:
Laura Kelsey 01778 701491/07834 182613


Gunthorpe, Paston & Werrington areas:
Laura Tilley 01733 325677


Crowland area:
Jenny & Chris King 01733 211247


Central Peterborough area:
Julia Heppel 01733 560894


If you find making initial contact with us difficult, why not ask your midwife, health visitor, community nurse, social worker or a friend to contact us on your behalf.  Our New Parent contacts will then gladly contact you when you are ready.


What the Peterborough Area Down’s Syndrome Group can offer:

  • Support from a fellow parents
  • Advice and information on services available in this area
  • Advice on benefits and how to apply
  • Names and address of other supportive organisations
  • An invitation to our events and support groups where you will meet other parents

If your child has any extra medical issues, we may be able to put you in touch with a parent whose child has similar challenges.


SEE OUR RESOURCES & USEFUL LINKS PAGE FOR MORE DETAILS OF SUPPORT & LOCAL GROUPS