Maggie’s son Chris is doing a sponsored bike ride round Cambridgeshire, ToC100 is a 100 mile, fully closed sportive, which will see 12,000 riders take to the roads in and around Cambridgeshire on Sunday 2nd June 2019. For details of how to sponsor Chris please click here

Two of our trustees are bravely taking part in the Rat Race at Burghley, Laura Tilley and Miranda Rock are limbering up in preparation for the big day. The funds raised will be used to help fund our exciting new project T21, please see the website for more details and hopefully you can share this with friends and family.

It’s been a busy year since our last one…..

PADSG  Annual General Meeting

with fish and chip supper

7:30pm Tuesday 7th May 2019

@ Honeyhill Children’s Centre

As always our AGM is open to all members and we would love as many members to attend as possible to show your support and so you can hear about all that we have done and plan to do as a group. Louise Ravenscroft from Family Voice will give a talk too.

We’re hoping that we might have some new trustees this year, please give it some thought, and if you’re interested get in touch.

Please can you let Laura Tilley know that you’ll be attending and whether you’d like fishcake and chips or battered sausage and chips.

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On Thursday 21st March we will be celebrating World Down’s Syndrome Day, a chance for you all to raise awareness of our local group and also to raise much needed funds.

Last year two of our trustees held coffee mornings and raised over £300! Money raised for our group goes towards keeping our activities running, especially SPOT.

Down’s Syndrome International run a campaign that encourages people to wear lots of socks on the 21st March, details can be found here and if you post any photos don’t forget to tag us and #lotsofsocks.

Please get in touch and let us know if we can promote anything amongst our members and we’d love to hear what you’ve done.

Below is a link to a colouring in page, you could print, colour in and display it to raise awareness.

world-down-syndrome-day.pdf

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As you will be aware we are working towards creating a cafe for young adults with Downs Syndrome to gain work experience, learning opportunities and interact with the local community. We will share updates on this project soon.

Meanwhile, one of our fundraising events to help this project has been taken on by a team of willing volunteers who will be competing in The Rat Race 2019 at Burghley House. This event is a 13 mile race with over 200 obstacles to overcome on the way round. Miranda Rock one of our trustees is running and for further details on the event and how to sponsor our team please view our Running for T21 page

Our newsletter was emailed out yesterday afternoon (8/2/19) full of details of what we’ve been up to and what is coming up. If you haven’t received a copy and we have your email address please check your junk or trash folders. If there isn’t a copy there please send us a message via facebook or Maggie or Laura and we’ll help you.

A copy of the email can be seen here

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Once upon a time in an land far away, well in Peterborough at Honeyhill Children’s Centre some very clever elves learnt lines, sang songs and rehearsed a show for all the lovely boys and girls to come and watch. Oh yes they did!

The kind elves have reserved tickets for for PADSG members for the 2pm show on Saturday 22nd December, if you can please let us know if you can attend by Tuesday 18th December PADSG members and families will receive their tickets for free, however we have a limited number of tickets and will be allocated on a first come first served basis. Please let Laura Kelsey know ASAP if you would like tickets and how many children and adult tickets by contacting her via this site, our Facebook page or the email address in the email sent out to members today (11/12/18)

Looking forward to seeing you all for a fun afternoon.

If you are online shopping this Christmas please remember to use Easyfundraising and help to raise money for our group.

It’s a really simple way to raise money for us through your everyday online shopping with over 3,300 big name retailers including Amazon, Argos, John Lewis and ASOS, and it’s completely free!

Please support us: https://www.easyfundraising.org.uk/causes/padsg/

Raise fund via easyfundraising Easyfundraising retailers

It was lovely to see so many of our members at our Christmas Party, our celebrations continue this weekend with our fundraising Christmas Concert.

Singing for Fun and Chloe’s Dance Company dancers will be joining Peterborough Area Down’s Syndrome Group for a Christmas Concert

On Sunday, 9th December 2018 at 2:30pm at St Mary’s Church in Duddington

There will be songs from musicals, carols, dancing and plenty of fun.

Many of our members have been enjoying dance classes with Chloe and in addition to their phenomenal performance at The Cresset this year they will be performing a dance for us at this concert.

We would love to see the church full, please support us and bring your family and friends. This event is one of our many fundraising opportunities that help to keep our group running. To continue to provide the services we do such as speech and language therapy we must raise in the region of £12,000 every year.

2016 Concert

Helen Harber fights against cancer for the sixth time., Helen was enjoying a relaxing summer with her adorable son; Luke, and her partner, Stephen. The previous few years had been an emotional and physical roller coaster ride, with two bouts of breast cancer, a lumpectomy, and double mastectomy. Finally, she felt that she was on the road to recovery, and was moving forward again. She felt happy with the love of her life, who was also incredibly supportive towards both her and her son, Luke, who although being a typical 14 years old, also had the challenges of Down Syndrome. Out of the blue, Helen, then aged 49, was devastatingly diagnosed with two extremely rare uterine cancers, called Carcinosarcomas. Werrington, Peterborough Monday 31 July 2017. Picture by Terry Harris.

Helen Harber.

We are heartbroken to let you know that Helen Harber, mother of Luke, passed away yesterday morning.

As many of you know, Helen lived with cancer for some time and took it on with gentle positivity. We will share further details of Helen’s funeral and remembrance by email, but in the meantime all our thoughts are with Luke, Stephen and their family.

If you have any questions around supporting Luke in the group in the weeks and months ahead, the Down’s Syndrome Association guidance on handling bereavement is published here

Laura and Maggie